Wednesday, September 9, 2015

The Update on Zella

Zella's geneticist called today.  The micro array came back and was...completely normal.  This doesn't completely rule out a genetic condition, but it certainly brings us far closer to a potential diagnosis I would rather ignore.

Cerebral Palsy.

"...sitting in the rubble, I can see the stars."

I have taken everything in my life for, parents, husband, kids, family, upbringing, home, health, safety...until now.  It is only now, thirty years into my life, that I am painfully aware of what so many in this world have known for years, or perhaps for a lifetime - we are not promised a life of gumdrops and roses.  Many of us are blessed beyond measure, but life's trials always come.

I am lucky to know many brave and courageous friends who have walked this road long before me...with so much grace and dignity.  I have witnessed a gorgeous little boy, Henry, "embrace the bif" and defy the odds over and over and over again with each setback, every emergency surgery, and countless specialist appointments.  And I have seen his mother, Erin, walk this road beside him...never once wavering in her faith.  Where many most would fall apart, she looks to the only one who carries us when we can not go on.

Our little girl may never measure up to the world's standards when it comes to physical perfection, but Zella's life has a far greater purpose.

I have so much to learn from her.

"Only when we're broken are we whole."

1 comment:

Nicole Dufendach said...

Oh Amanda, we will be praying for you guys and your sweet baby girl.